By Taylor Woodard MPAff & MSSW, Program Associate, The Arc The Stephen Beck, Jr. Achieving a Better Life Experience (ABLE) Act authorizes tax-advantaged savings accounts for some people with disabilities and their families. Modeled after the existing qualified tuition (529) accounts, these accounts allow for more individual choice and control over spending, while protecting eligibility [...]
By Janet Lowder, CELA, and Elena Lidrbauch, CELA Directly receiving a personal injury settlement, inheritance or other sizable sum of money can derail the finances of someone with disabilities. That’s because having more than $2,000 in resources makes them ineligible for means-tested government programs such as Medicaid and SSI (Supplemental Security Income), which may be [...]
By Mary Waltari, Esq. Are you aware of the federal government programs available to minors? Some cover all minors and some cover only minors with disabilities. They vary from cash payments to healthcare coverage to a range of other supports. Cash Payments Supplemental Security Income (SSI) Children with qualifying disabilities whose families meet SSI's low [...]
By Paula Peaden, Esq. In-home services are often the key to keeping individuals with disabilities of all ages living in the mainstream community. But hiring and working with aides in the family home can be an emotion-fraught experience. Here are some tips. Think Through Needs Carefully consider exactly what services your loved one requires. These [...]
By Stephen W. Dale, Esq. The first ABLE programs have been launched in Florida, Nebraska, Ohio and Tennessee, and three of them welcome applicants from other states. Since accounts can be rolled over from one state to another, families throughout the U.S. may want to begin exploring their options now. ABLE accounts, which grow tax-free, [...]
By Katherine N. Barr, Esq. Only 17.8 percent of U.S. working age individuals with disabilities have jobs. For adults who have autism, a developmental disability that has skyrocketed in prevalence, the unemployment rate is 80% (The Economist, April 2016). On average, those with jobs only worked part-time and faced large pay gaps compared to the [...]
By Taylor Woodard, MPAff & MSSW, Program Associate, The Arc Janet Locke tossed her books down on the counter and got up her nerve. "Hey, Mom, there is something Lyn and I want to discuss with you and Dad. You two have done so much for Lyn all these years, making sure she had every [...]
By Jennifer L. Lile, CELA There are up to 134,000 children with "special needs" awaiting permanent homes, according to the National Adoption Center, and the demand is growing. In the context of foster care and child welfare, "special needs" refers not only to a child who has disabilities, but to children whose risk factors for [...]
By Jane Skelton, Esq. Long-term care is expensive, and an older individual may consider Medicaid to pay for that care. If the individual has a family member or friend with a disability, a sole benefit trust could be considered. If drafted correctly, transfers of the individual’s assets to a sole benefit trust would hasten Medicaid [...]
By Christopher W. Smith, Esq. When a special needs trust (SNT) is being set up, families are typically most concerned about government benefit programs like Medicaid and Social Security. But how might an SNT impact an individual's ability to receive federal financial aid for college? The answer is surprisingly gray. Let's first state the obvious. [...]
Discrimination Against Parents with Disabilities By Robert L. McClelland, CELA The National Center on Parents with Disabilities estimates that at least 4.1 million Americans with children under 18 (6.2 percent) have disabilities of their own. Every day, in countless ways, those moms and dads battle deep-rooted stereotypes as they take on that toughest of jobs [...]
By Linda M. Gorczynski, Esq. For many families, negotiating for their child’s special ed services is highly stressful. So much depends on a young student’s getting the tools to prepare for adulthood. By law, every child with disabilities is entitled to a “free and appropriate” public education (FAPE), but coming to agreement on exactly what [...]
SNA attorneys have ongoing involvement with the wide-ranging issues faced by individuals with disabilities, their families and the professionals who serve them. Below is a sampling of posts from member blogs and newsletters. Family Case Study Planning for the long-term needs of a loved one with disabilities is a big job. Check out this case study about [...]
By Robert F. Brogan, CELA It was in late 2013 that the Bipartisan Policy Center (BPC), led by former Senators Tom Daschle (D) and Bill Frist (R), began studying the financing and delivery of long-term care. It took only a few months for them to assess the problem's scope. Long-term care is costly in the [...]
By The Arc "Vote as if your life depends on it," Justin Dart, Jr., the disability rights pioneer often known as the father of the Americans with Disabilities Act, implored us, "Because it does." Our core values call us to focus on voting during Developmental Disabilities Awareness Month in this critical election year. The Arc's [...]
By James McCarten, Esq. With all the daily responsibilities that parents juggle when one of their children has a disability (and, therefore, special needs), it's tough to find time to plan for the future. But that's what it takes when a loved one has a disability that may affect his/her ability to be self-supporting. It [...]
By Mary Waltari, Esq. The summer camp experience can benefit a child with special needs and parents alike, but they're likely to feel anxious ahead of time. For kids, it's fear of the unfamiliar. For parents, it's worries about having someone who doesn't really know their child suddenly take charge. But if properly researched, spending [...]
By Tara Anne Pleat, Esq. In many states, the Medicaid program can generally be seen as having a strong institutional bias when it comes to coverage of long-term care, forcing many families to place loved ones in skilled care facilities or similar institutional settings, despite longstanding efforts to serve individuals with disabilities in mainstream settings. [...]
Shirley B. Whitenack, Esq. The Affordable Care Act (ACA) was passed nearly six years ago and its insurance exchanges are over two years old. How have individuals with disabilities fared under the new system, which is meant to make health coverage universally available? Improvements are undeniable, but gaps remain. While there are more options, making [...]
By Jason Frank, CELA and Jenna L. Snyder Both the Americans with Disabilities Act (ADA) and the Supreme Court's related Olmstead decision support an individual's right to receive long-term care in the least restrictive manner possible. Yet when families ask if Medicaid can help them pay for home and community-based services (HCBS), the answer is [...]