By Emily A. Donaldson, CELA As mid-term elections approach, the stakes are high for individuals with disabilities. Budget battles are being waged at every level of government, threatening Medicaid, SSDI, Medicare and other programs that are essential to their quality of life. The Voting Rights Act of 1965, Americans with Disabilities Act and Help American [...]
By Neal A. Winston, CELA Supplemental Security Income (SSI) is a monthly cash payment to qualifying individuals with disabilities, based on financial need. While it often forms the foundation of their financial security, its requirements are both strict and complex. Even attorneys who don’t routinely deal with public benefits may get confused. So it’s not [...]
By Daniel Surprenant, CELA Special needs trusts (SNTs) are financial instruments designed to enhance quality of life for individuals with disabilities by supplementing the government benefits available to them. Assets held in SNTs aren’t counted when determining an individual’s eligibility for means-tested public programs such as Medicaid and Supplemental Security Income (SSI). Since personal circumstances [...]
The Special Needs Alliance (SNA) and ABLE National Resource Center (ANRC) have agreed to collaborate on efforts to educate individuals with disabilities, their families and other stakeholders on how ABLE accounts and special needs trusts (SNTs) can contribute to improved quality of life. Funds held in either instrument, if properly used, are not considered countable [...]
By Lisa Orlando, Invo-Progressus Communication is such a fundamental part of who we are that we can take for granted how often we use these skills. Speaking, listening, questioning and responding are all a part of our daily lives. That is why so much emphasis is placed on communication regarding your child with special needs. [...]
By Kelly A. Thompson, Esq. The Social Security Administration (SSA) has appointed millions of representative payees to manage Supplemental Security Income (SSI) and Social Security Disability Insurance (SSDI) for individuals who are unable to handle their own finances. Such assistance, which is provided to minors, as well as those with cognitive disabilities or substance abuse [...]
By Desiree Kameka, Autism Housing Network As the project leader for the Autism Housing Network, I have visited over 100 residential options and social enterprises across our country. I have seen the great, the good, the bad, and the “I thought this was a good idea.” Abraham Maslow was right when he listed “shelter” as [...]
By Shawn Majette, Esq. Special needs planning for a loved one with mental illness is complicated. Symptoms tend to wax and wane. This makes it difficult to balance protection and security with an individual’s right to privacy and independence. The key is to design legal instruments that adjust to changing circumstances. Families can often predict [...]
By Kelly A. Thompson, Esq. Given packed schedules, fragmented services and lack of information, how can families get started with special needs planning? A University of Illinois study found that fewer than half its respondents had done long-term planning for their children with developmental disabilities. Getting Started While the challenges are significant, the reality is [...]
Older Adults with Developmental Disabilities Want to Age in Place Pamela Merkle is executive director of the St. Louis-based, nonprofit Association on Aging with Developmental Disabilities (AADD). “Individuals with developmental disabilities are living longer, thanks to advances in healthcare.” she begins. “For the first time, large numbers are outliving caregiver parents, and because they seldom [...]
By James McCarten, Esq. As a 2017 holiday present to taxpayers, Congress passed tax legislation that your representatives, senators and many tax professionals have described as the most significant overhaul of our tax laws since 1986, when President Ronald Reagan's tax bill was passed. What follows is an overview of those provisions of what was [...]
By Amy C. O`Hara, CELA There are an estimated 11.4 million individuals receiving services through both Medicare and Medicaid. These individuals, or “dual eligible beneficiaries,” are among some of the most vulnerable members of the patient population, due to a combination of low income and a high incidence of chronic health conditions. However, dual eligible [...]
By Scott Suzuki, Esq. Scott Suzuki (in white shirt) has been a Special Olympics basketball coach for over 15 years. The recent Winter Olympics reminded us that competitive athletics can bridge differences of many kinds. Special Olympics, which will celebrate its 50th anniversary this summer, has long understood that sports can be a powerful mechanism [...]
By Robert B. Fleming, CELA ABLE accounts are relatively new savings options open to certain individuals with disabilities. As long as the funds are used “to improve the beneficiary’s health, independence of quality of life,” earnings aren’t taxed and eligibility for means-tested government programs won’t be affected. Now, families who previously established 529 college savings [...]
By Elizabeth L. Gray, Esq. While snowstorms, fires and other disasters can plunge entire communities into chaos, the challenges for those with disabilities are often even more acute. But with careful planning, individuals with special needs and their families can reduce the disruption. Get Informed Begin by contacting your local emergency management office to understand [...]
By TJ Sutcliffe, Director, Income & Housing Policy, The Arc The need for paid family and medical leave is universal. Nearly all of us at some point will need time away from work to care for a family member’s or our own serious medical condition, or to welcome a new baby or new child into [...]
By Barbara Isenhour, Esq. Citizenship issues can significantly complicate the often bewildering process of qualifying for special needs benefits. Each federal program has its own stringent citizenship regulations. In addition, Medicaid and Supplemental Security Income (SSI), which are two of the most important programs for individuals with disabilities, have strict income requirements. If a non-citizen [...]
By Kelly A. Thompson, Esq. While post-traumatic stress disorder (PTSD) occurs throughout the U.S. population, military veterans are particularly at risk. Some studies estimate that up to 30 percent of the vets who have served in Iraq and Afghanistan have been diagnosed with PTSD. The disorder, which is caused by experiencing or witnessing a terrifying [...]
Travel can be especially stressful for individuals with disabilities…or it can open doors. During October, members of the Special Needs Alliance participated in programs in Chicago, Houston and Phoenix that were designed to introduce those with special needs to the airport experience. The Houston and Phoenix events were part of a nationwide program, Wings for [...]
By Stephen W. Dale, Esq. Crowdfunding, with websites such as GoFundMe, has increasingly been used to raise money on behalf of individuals with disabilities. In such cases, family, friends and members of the general public want to help pay for medical treatments, home renovations or the many other expenses faced by someone with special needs [...]