Loud & Clear

Self-Advocate’s Golden Gate Adventure

Angela at the Golden Gate Bridge, which has long fascinated her. Late last year, we wrote about Angela Campbell’s approaching dream-come-true trip to see the Golden Gate Bridge. The award-winning self-advocate from Madison, Wisconsin, mentioned her longing to visit the iconic landmark during her acceptance speech at an event hosted by The Arc-Dane [...]

2024-12-04T09:12:01-05:00

“Wings for All” Activists Make a Dream Come True

(From left) Job Coach Kathy Walters and self-advocate Angela Campbell with the “boarding pass” for their round-trip flight to San Francisco. Angela Campbell, of Madison, Wisconsin, has a can-do attitude that touched the hearts of Wings for All sponsors and volunteers, inspiring them to make a dream come true. “I’m saving my money [...]

2024-12-04T09:20:35-05:00

What Parents Need to Know about Special Education Rights

This post was authored  by Marion M. Walsh, Esq., a partner with Littman Krooks LLP, which has offices in White Plains and New York City. She has worked in education law for  over 20 years and leads the special education department at Littman Krooks. She is certified by the New York State Education Department  as an impartial hearing officer for children with disabilities.

2024-12-04T09:22:23-05:00

Is Self-Employment Right for You?

This post was co-authored by John S. Kitchen, Esq., and Janet Lowder, CELA. John has law offices in Auburn and Laconia, New Hampshire. His practice areas include special needs trusts (SNTs), powers of attorney, wills and revocable trusts for individuals who have a family member or friend with disabilities. Janet’s firm is headquartered in Cleveland, with several other offices throughout the state. She focuses on estate planning for the elderly and for individuals with special needs and is recognized for her knowledge of Medicaid.

2024-12-04T09:32:51-05:00Tags: |

Guardianship Should Be a Last Resort

This post was written by former Special Needs Alliance president Katherine N. Barr, Esq., a member of Sirote & Permutt’s Private Clients, Trusts and Estates Practice Group, Birmingham, Alabama.  Much of her practice involves special needs planning, through which she assists clients in providing for a family member in a way that does not jeopardize government benefits.  She is a fellow of the American College of Trust and Estate Counsel (ACTEC) and has been cited in The Best Lawyers in America©.

2024-12-04T09:35:59-05:00Tags: |

Full Funding of the IDEA Critical for Our Children

By Linda M. Gorczynski, Esq. It's critical that we get increased funding for special education services in order to meet the needs of students with disabilities and achieve compliance with the Individuals with Disabilities Education Act (IDEA). Attempts have been made to make legislative changes for years, but it hasn't happened. We all need to [...]

2024-12-04T09:40:19-05:00

Letter of Intent Gives Valuable Advice to Future Caregivers

By Glynis A. Ritchie, Esq. Parents of children with special needs have lots on their plates. When it comes to estate planning, the tasks at hand can be complicated, and the choices parents have to make – how to provide for their child’s needs when they are not around and whom to name as fiduciaries [...]

2024-12-04T09:42:00-05:00Tags: |

How In-Kind Support and Maintenance (ISM) Affects Benefits

By Martha C. Brown, CELA Special needs trusts (SNTs) are established to supplement the benefits that individuals with disabilities receive from government programs, such as Medicaid and SSI (Supplemental Security Income). They protect funds intended to enhance quality of life without rendering the beneficiary ineligible for means-tested benefits. Since SSI is meant to cover food [...]

2024-12-04T09:44:59-05:00

Bullying and Kids with Disabilities

By Judith L. Smith, Esq. Bullying in its many forms is a serious, all-too-common problem, and social media has moved this abuse online. The bullying may involve insults, threats or physical violence, with results that range from damaged self-esteem to poor academic performance to bodily injury. Children with special needs are more frequently targeted by [...]

2024-12-04T09:49:28-05:00

Wings for All® Takes the Fear Out of Flying

Barbara Hughes, center, Vice President of The Arc Dane County, chaired the stunningly successful event.  From left, Danielle Sendelbach and Bianca McCormick from Barbara’s office were two of the many volunteers who helped out. On Saturday, October 20, nearly 50 children and adults with special needs, along with adult companions, braved high winds and the [...]

2024-12-04T10:12:33-05:00

Preparing for Dementia

By Sally L. Schoffstall, CELA Dementia is on the rise with the aging of baby boomers. Nearly six million individuals in the U.S. have Alzheimer’s, while others deal with cognitive decline related to Parkinson’s disease, stroke, Downs Syndrome or other medical conditions. The changes are often wrenching, as parents become vulnerable and adult children grieve [...]

2024-12-04T10:14:10-05:00

Considerations Selecting a Family Trustee

By Tara Anne Pleat, Esq. It is not uncommon for parents who are creating a supplemental needs trust (SNT) for a loved one with disabilities to assume that naming one of the child’s siblings as the trustee is a perfect solution. They often believe that someone who’s grown up alongside the beneficiary is best positioned [...]

Mother and Son Activists Shared Story in Far from the Tree

Emily Kingsley and son Jason are prominently featured in Andrew Solomon’s Far from the Tree, recognized by The New York Times as one of the 10 Best Books of 2012, and in the film of the same name. Far from the Tree explores family relationships when a child is significantly different from parents. Jason has [...]

2024-12-04T10:28:06-05:00